Tag: #Blood Cancer United

  • **šŸ“° Chemo Chronicles: Dispatches from the Front Lines of Infusion Nation

    By: Pattie Presswoman, your roving, slightly woozy, always-observant reporter

    Ladies, gentlemen, and all you brave souls tuning in from the comfort of your recliners, heating pads, or emotional support snacks—welcome back to another thrilling episode of Chemo Chronicles, brought to you live from the bustling (or not) newsroom of Infusion Room 3.

    Let’s set the scene.

    Last week, the chemo room was—how shall I put this delicately?—slower than a sloth on Benadryl.
    My side of the room was so still I swear I heard my own thoughts echo.
    (I know… ā€œdead.ā€ I said it. I apologize to the universe immediately.)

    Chair 8 Guy?
    He got thirty minutes of whatever they were pumping into him, hopped up like he had a dinner reservation, and evaporated.
    Lady across from me? Same story. Whoosh. Gone before my IV pole could say goodbye.

    Meanwhile, yours truly sat there marinating—slow-cooking like a pot roast.

    Five minutes before I was finished, a woman was wheeled in, clearly looking at me like I was sitting in her rightful throne.
    I told her and her daughter, ā€œPromise, I’ll be out in five.ā€
    But people on drugs—I mean this with all the love in my heart—have the patience of caffeinated toddlers.
    They want the show started and they want it now. She picked another chair.

    When I was done I gathered my blanket, the nurse unplugged my little robot helper, and I strutted out like a seasoned pro.
    And that’s when I realized…

    I had been in the ghost town half of the chemo room.
    When I walked toward the exit, suddenly things got loud. Busy. Alive.
    The right side of the room? PACKED.
    I mean, it was like they were hosting a tailgate party over there.

    Chairs filled. Voices chatting.
    One lady knitting like she was in a speed competition.
    A man crunching ice like he was digging for gold.
    The nurse on that side looked like she needed a medal… or a margarita.

    People are funny like that.
    No assigned seats, but we all swear we have a spot that’s ours.
    Whole empty row? Doesn’t matter.
    If someone’s in ā€œyour chair,ā€ the universe feels slightly misaligned.

    As I passed the bustling side, my friend spotted me and waved with the enthusiasm of someone finally seeing civilization after wandering the desert.
    I waved back, we both grinned…

    …and then I got the hell out of there before anyone tried to assign me a seat, a job, or a conversation about their neighbor’s cousin’s hairdresser’s cancer journey.

    And that, dear readers, concludes this week’s thrilling broadcast from Chemo Central.

    Until next time—
    This is Pattie Presswoman, signing off and rolling out

  • When ā€œAll the Time in the Worldā€ Shows Up… and I Take a Nap Instead

    I remember dreaming about this for years.
    Decades even.

    If I could just have weeks and weeks to sit still…
    To rest without guilt,
    To look out at the lake and let the birds entertain me,
    To sleep in a warm sunbeam like Sassy,
    To learn fascinating things I’d never heard of before.

    If only I had the time.

    Well guess what?
    Now I do have the time.
    The universe delivered it—wrapped in chemo, brain fog, and a recliner chair—but still, technically: Time.

    And what do I do with this golden opportunity?
    I sit.
    I rest.
    I binge-watch TV shows that are so dumb I lose IQ points just hearing the theme song.
    Some days I think my brain is slowly melting into the couch cushions.

    So here I am, being productive in the only way I can muster:
    I’m making a “Later, When I’m Energetic and Less Foggy” list.

    A list of things Future Me can do once the exhaustion lifts, the brain fog thins, and my body stops feeling like it’s held together with duct tape and stubbornness.

    The problem?
    At this very moment, I can’t think of a single thing to put on the list.
    Not. One.

    So I’m asking you—yes, you reading this—
    Drop some ideas for my coming energetic, fog-free life.
    Big ideas, tiny ideas, ridiculous ideas, peaceful ideas…
    I’ll take them all.

    Help me build the list that Current Me can’t quite pull out of this sleepy, chemo-brain haze.

    Because someday soon, the fog will lift, the energy will return, and I want to be ready. PLEASE DROP SOME IDEAS!

  • Tantrums & Lightning Bugs

    Let me just say it plainly:
    I. Want. To. Feel. Normal.

    Is that so unreasonable?
    To wake up with energy?
    To know who I am and what day it is?
    (At this point, I’d settle for getting one of those right.)

    And honestly—
    some days my inner toddler wakes up before I do.

    She wants to march into Wal-Mart (where else),
    plop down in the middle of the stupid seasonal aisle,
    and unleash a Big-Ass Deluxe Super-Sized Tantrumā„¢
    complete with foot stomping,
    arm flailing,
    and a dramatic,
    ā€œI WANT THIS TO BE O–VER, DAMMIT!ā€

    I want to scream it so loud
    they hear it in Sporting Goods.

    But then…
    I re-read what I wrote.

    And suddenly the tantrum isn’t quite as adorable as it sounded in my head.
    Because WOW.
    Who knew I was the spoiled brat in this equation?

    Here I am whining about wanting the finish line closer,
    when some people don’t even get a finish line—
    just more road.
    More fight.
    More pain.
    More ā€œkeep going even though you’re tired down to your soul.ā€

    Talk about a perspective slap.

    Meanwhile I’ve got a lightning bug blinking at me
    from the end of my tunnel,
    like,
    ā€œHey girl, I’m tiny but I’m TRYING.ā€

    And if I get even a flicker of light,
    I damn well want to help somebody else
    spot theirs.

    So instead of melting down in Wal-Mart
    (tempting though it still is),
    I’m redirecting that dramatic energy
    toward something useful:

    How to Help Someone Who’s in the Dark

    • Send a meal (or a DoorDash code).
    A cancer patient receiving a no-cook dinner is basically the Oscars of kindness.

    • Text them with ZERO expectation of reply.
    ā€œThinking of you—don’t answer this or I’ll fight you.ā€
    Perfect.

    • Learn other people’s stories, not just mine.
    Sites full of real humans being brave and messy:

    • The Mighty
    • Stupid Cancer
    • Cancer Support Community (legit, not woo-woo)
    • American Cancer Society (the grown-up in the room)

    • Volunteer without leaving your recliner.

    • Letters Against Isolation → send love to lonely seniors
    • Imerman Angels → one-on-one support mentoring

    • Donate if you can. Share if you can’t.
    No guilt. Just options.

    And maybe the biggest one:

    When you have even ONE lightning-bug moment,
    hold it up.
    Let someone else borrow the glow.

    Because tantrums feel good for a minute.
    But helping someone else find their light?
    That feels good for a long time.

  • Dancing Alone (and Liking It)

    Sometimes I just want to be alone.
    I think I’ve always been this way.

    There’s something deeply peaceful about sitting in my own silence — just me and my thoughts, no noise, no small talk, no expectations. It’s not lonely. It’s re-energizing. I actually like my own company.

    When I was a little girl, I used to sneak into the living room, put on my mother’s Tchaikovsky album, and dance with the door shut tight. I didn’t have a clue how to dance — but oh, the freedom! The music would fill the air, and I’d twirl until I fell over laughing. It was my secret world, just me being me.

    Now, after days of chemo exhaustion, I’ve found myself sitting quietly again — just like that little girl, alone but content. My body might be tired, but my mind is still stretching its arms toward all the other versions of me waiting in the wings:

    The sewist. The reader. The dancer. The cook.
    The comedian. The writer. The helper. The friend.

    I’m ready for those me’s to come back out to play.
    Because underneath this worn-out chemo girl is still that same dreamer — the one who dances when nobody’s watching.

  • 🐾 Sassy Walks: Mistletoe Madness

    Oh. My. Dog. Did we have fun today!

    Now that I’ve cracked the code on how to trick Mama into walking, we are getting it done. Today’s adventure: something called a ā€œMistletoe Market.ā€ Don’t ask me what mistletoe is, but apparently it’s festive and doesn’t taste like chicken.

    I proudly walked Mama on the leash (because obviously someone has to take charge), while Makenzie pushed my bestie, Hennie, in her stroller. Hennie is a Chiweenie—a 7-pound diva who thinks ā€œstrollingā€ means standing still while everyone adores her. Walking her is worse than walking Mama. Sooooo slow. And you have to watch where you step. Every. Single. Second.

    The Market was outside with rows of tents full of people, sparkly things, and—best part—FOOD. And even better—DOG TREATS! I led Mama up and down the hills, in and out of tents, showing her how it’s done. Everyone stopped to talk to me and Hennie (because, hello, stars of the show). A photographer even took our picture—we might be famous soon. I’ll let my people handle the press release.

    It was hot out though, and Mama started sweating and huffing like she was pulling a sled team in July. I made her sit down and drink water—hydration is key, folks.

    We didn’t buy much, but looking was fun. Then we hit Wal-Mart! Hennie and I got the royal buggy treatment and sniffed our way through the aisles while Mama shopped. So many smells, so many admirers. People kept stopping to say how cute we were, which I think is good for Mama—it makes her slow down, smile, and remember how to be nice to people. Cancer brain, you know.

    All in all, I’d call today a total success. Mama got her steps in, Hennie and I worked the crowd, and the Mistletoe Market will never be the same.

    Stay tuned—me and Hennie have big plans for tomorrow. Gotta keep Mama moving!