Third Act With Pattie

Tag: chemotherapy

  • Then They Schedule The Next Scan

    Then They Schedule The Next Scan

    The doctor smiled.

    “Everything looks good.  No evidence of disease.”

    Hubby smiled.

    I smiled.

    But inside…

    someone screamed,

    I can’t keep doing this.

    It’s just too much.

    The celebration lasts about five minutes.

    Then they schedule the next scan.

    Somewhere around the three-month mark…

    the music starts.

    And I know it’s time to dance.

    I stop trusting my body.

    That backache?

    Probably from lifting boxes.

    Or maybe not.

    That pain in my side?

    Probably getting older.

    Or maybe not.

    The dance begins.

    First the blood work.

    Then the scan.

    Then the appointment.

    Same building.
    Same smells.
    Same chairs.


    Same people smiling kindly

    while my body remembers

    the fight of my life.  

    This isn’t my first time.

    I know the steps by heart.

    Smile.

    Joke with the receptionist.

    Tell Hubby I’m sure everything will be fine.

    Tell my family not to worry.

    Tell myself not to worry.

    And hope…

    If I say it enough times…

    I can believe it.

    They warned me the chemotherapy would take my hair.

    They warned me it would make me sick.

    They warned me I’d be tired.

    Nobody warned me that remission would have side effects too.

    Logically, I think it through.  

    The cancer I had was not caught by the blood work.

    So I don’t have to worry about that.

    Logically, I do the comparisons.

    Six months ago a PET scan showed nothing.

    A PET scan is more complete than a CT scan.

    Therefore, there will be  nothing on the CT scan.

    I argued my case like a lawyer.

    The evidence was solid.

    My body objected anyway.

    Because the body doesn’t work on logic.

    My body remembers what it felt like to hear, “It’s back.”

    My heart remembers the panic.

    My mind remembers my fear.

    And even my tears

    can only be held back for so long.

    Every clear scan…

    costs me

    a little piece of myself.

    Cancer may be in remission.

    Fear remembers every detail.

    So for the next two years…

    every three months…

    I’ll do the dance.

    And every three months…

    I’ll have to teach my heart

    what my CT scan already knows. 

    I got the news on Wednesday.

    “No evidence of disease.”

    Today is Thursday.

    I’ve cried most of the day.

    Not because the news was bad.

    Because my heart is finally letting go of everything it carried getting here.

    The celebration lasted about five minutes.

    In about ten weeks…

    the music will start again.

    If you know someone living scan to scan…

    remember…

    they aren’t just waiting for results.

    they’re reliving the day their life changed.

    Every.

    Single.

    Time.

    -Pattie

  • Congratulations, You’re Cancer-Free. Now Go Figure It Out.

    When you’re in active cancer treatment, you have a whole damn professional posse.

    A cancer treatment team.
    Oncologist. Nurses. Techs.
    Dieticians. Counselors. Social workers.
    People who actually answer the phone at 2 a.m.

    Feel a little warm? Call.
    Feel weird? Call.
    Feel like your toe might fall off or your brain might be melting? Call.

    They’ve got you. Constantly. Comfortingly. Competently.

    And then one day you ring the bell, get your all-clear PET scan, and—SURPRISE!—they send you home with a smile, a pat on the head, and instructions to “come back in three months.”

    Three.
    Whole.
    Months.

    No one says, “Hey, by the way, we’re still here.”
    No one says, “Call us if your brain loses its damn mind.”
    The oncologist doesn’t say, “Questions? Anxiety? Existential dread?”
    The dietician does not check in.
    The team doesn’t disappear… but they sure stop waving you back in.

    Meanwhile, your friends and family are THRILLED.
    You’re cured! You won! You should be HAPPY!
    Grateful!
    Sparkly!
    Full of bubbles and light and inspirational Instagram captions!

    Except… you’re not.

    Because you just spent six months—or years—fighting a war in hell.
    You survived.
    But your brain and emotions are still in the foxhole.

    So you cry.
    You worry.
    You spiral.
    You do not feel happy happy joy joy. Instead, you feel guilty.

    The first time I landed in this weird no-WOman’s-land, I developed a crippling fear of going outside. Anywhere. Ever. I couldn’t walk out my apartment door without a full-blown anxiety attack.

    I lived like that until my first three-month checkup. I finally told my oncologist.

    He said, “Don’t worry. It’ll go away.”
    (Oncologists are very chill about things that are not life or death – to them.)

    But the nurse?
    She leaned in and said, “You still have access to the team. Let me set you up with a counselor who will COME TO YOU.” (No virtual reality in 2003.)

    And she did.
    For a month, we worked through it.
    The fear faded—just like the doctor said it would.

    But here’s the thing: how long would it have taken without the team?
    How much unnecessary suffering happens because no one tells you that you’re allowed to keep asking for help?

    This time around, I’m doing better—because I knew this part was coming.
    Some days I’m genuinely happy.
    Some days I’m absolutely not.

    And that is VERY confusing for the people who love me.

    Let’s get one thing straight:
    I am a KICK-ASS WARRIOR.
    And if you’re standing where I’m standing right now—so are YOU.

    But even warriors get tired.
    And scared.
    And emotionally wrecked.

    So don’t beat yourself up.

    Celebrate when you can.
    Cry when you need to.
    Sleep.
    Be sad.
    Do nothing at all if that’s all you’ve got.

    This part will pass.

    And when it does—
    you will still be a
    KICK. ASS. WARRIOR. 💥

    Sun on the water,
    sparkling like diamonds—
    I wish I could make them
    the thoughts in my head.

    I don’t remember
    when my mind was unburdened,
    when nothing pressed in
    or demanded to stay.

    Once there was only
    the shine of what’s coming,
    sparkling water ahead—
    a future of light.

    So I sit with the water,
    borrow its quiet persistence,
    letting each small sparkle
    remind me how to look forward again.

  • Normal (After Cancer Packs Up and Leaves… For Now)

    I haven’t thought about cancer much in the last three days.
    And apparently that makes me feel guilty.

    Is that normal?

    Hell if I know.

    Was I normal while I was going through chemotherapy — when cancer occupied every waking thought, every appointment, every nap, every Google search at 2 a.m.?
    And now that I haven’t thought about it much for a few days, am I suddenly not normal?

    Or… am I now normal because I’m not actively right now being poisoned by modern medicine in an effort to save my life?

    See how I slipped in right now?

    That little phrase is doing a lot of emotional heavy lifting.

    Because right now quietly implies this could change.
    Which means not thinking about cancer might be suspicious.
    But thinking it might come back is also exhausting.
    So which one is normal — not thinking about it, or thinking about it lurking around the corner like an uninvited guest who knows where you live?

    Honestly, cancer messes with your internal compass.
    When it’s gone, you don’t get a clean handoff to “regular life.”
    There’s no exit ramp labeled WELCOME BACK TO NORMAL.
    It’s more like you wander around asking, “Am I allowed to enjoy this?” and “Should I be more afraid right now?”

    And here’s the thing: I’ve never been normal normal anyway.

    As the saying goes, “Normal” is just a setting on the washing machine.
    (Which isn’t even a thing anymore, but I remember when it was. Right next to Permanent Press and Whatever This Fabric Is.)

    So maybe this is normal now — forgetting for a few days.
    Laughing.
    Living.
    Feeling weird about not feeling terrified.

    Maybe normal after cancer isn’t peace or fear — it’s the awkward, clumsy space in between, where you’re alive, suspicious of calm, and learning how to exist without an enemy to fight every minute of the day.

    If that’s normal… I guess I’ll take it.

  • The Steroid Cycle (AKA Punkinhead Squarepants Meets Bitchy Witch Woman)

    As I approach my last chemotherapy treatment, I have finally figured out the cycle of how chemo affects me.

    Only took me five months.
    Clearly, I am a genius.

    Here’s the thing no one really prepares you for: along with my chemo IV cocktails come some lovely liquid steroids. And when I have the long chemo days, I also get to take a whole lot of steroid pills.

    One hundred and twenty mgs a day.

    Hence the transformation into Punkinhead Squarepants, combined with Crying Witch Woman, mixed with Can’t Sleep for a Week, topped off with Bitchy Bitchy Bitchy.

    It’s a stunning look. Truly.

    Tomorrow I take my last steroids. Which leads me to wonder…
    How long does bitchy bitchy take to go away?
    Asking for myself. And for everyone who loves me.

    Another thing I’ve finally figured out: after the steroids pile on, the exhaustion and misery pile on too. Enter the deep, deep hole.

    Now, are you supposed to quit steroids cold turkey?
    No.
    But that’s exactly what happens every long chemo week.

    And every time, the hole gobbles me up.

    This week—because it’s the week before Christmas and not a single decoration is up—I am trying very hard to stay outside the hole. I’m allowing myself to look into it, but not climb in and unpack.

    Next week should be my last chemo treatment.

    But it’s not the end.

    Anyone who has ever been through this knows that it never really ends. The side effects linger. The fear lingers. You become a person who questions every symptom:

    • My ear hurts — cancer.
    • My nose is running — cancer.
    • I stubbed my toe — must be brain cancer.

    It takes a toll. And it never completely goes away.

    I was almost there once.
    Twenty-one years since my last cancer. I was almost at the place where cancer was no longer my go-to diagnosis.

    And then I found a lump on my back.

    And it all fell apart.

    So here I am again, with my old go-to firmly back in place.

    None of this is to say that I am not grateful—because I am.
    Grateful to God.
    To family.
    To friends.
    To Sassy.
    To sunshine.
    To the universe.

    Grateful for another chance to remember just how precious life is.

    I fully intend to live it.
    Fully.

    It just might take a little while.

  • Chemo Chronicles: Live from the Lounge of Liquid Courage

    Reporting live from the Chemo Room, folks, where the IV poles sway and the recliners are almost comfortable. It’s 10:30 a.m., and this joint is hopping — every single chair taken. That’s right, the chemo lounge is standing-room-only (well, reclining-room-only). I haven’t seen this kind of turnout in eleven visits. Clearly, today’s the day everyone got the “Let’s poison cancer!” memo.

    To my far right sits a young lady with all her hair. All of it. Long, shiny, shampoo-commercial hair. Naturally, I had to investigate (journalistic integrity, people). Turns out she’s here for an iron infusion. Bless her. May her iron rise and her hair remain glorious.

    Meanwhile, I stepped away to the restroom and came back to find the man to my immediate right completely covered by a blanket. Like, entirely. Head completely covered, a human burrito of concern. And you know in this room, we don’t talk about dead people — it’s bad mojo. So yes, I stared until I saw his chest rise and fall. Whew. Crisis averted. No grim reaper sightings today.

    Now, on my left sits a woman who clearly did not get the chemo memo about looking half-dead. She looks fabulous. Black shiny hair (real — I checked, again, reporter skills), perfect makeup, and an outfit that screams “Cougar Christmas Chic”: black sweater, leopard-print pants, and matching boots. I want to be her when I grow up.

    Across the room, two elderly gentlemen (okay fine, probably my age, damn it) are having the time of their lives chatting about everything under the sun. I’ve seen both of them here before, alone and quiet, but today? They’re laughing, talking about old times. (Sadly, I remembered a lot of it myself.) But it’s nice. It feels like a tiny bit of joy snuck in with the saline drip.

    Somebody’s in Mama’s old chair today. I haven’t seen her in weeks. Maybe she’s cured. God, I hope she’s cured!

    And in the far corner? A little gaggle of women talking about Christmas crafts they’ve made. Glitter, glue guns, and garland galore. I wish I could join that table, but a reporter’s got to stay on her beat.

    Fast-forward to 2:30 p.m. The chemo crowd has thinned out, leaving just me and the two gents — still solving the world’s problems and condemning the evils of some drug or another. The room hums quietly now. I can see the sunshine pouring through the window, a soft reminder that there’s life happening outside these IV poles.

    It’s been a good day in the chemo room.
    No deaths. Some laughs. A little envy. A little sunshine.
    And me — still here, still reporting.

    Chemo Chronicles: signing off until next drip.

    Breaking News

    The gentlemen just told their age. I am AT LEAST 10 years younger. Boy, I feel even better now!