Tag: non-hodgkins lynphoma

  • Chemo Chronicles V4

    Oh my gosh, oh my gosh you guys—guess who drew the short straw again? šŸ™‹ā€ā™€ļø Yep, me.

    But hold on—this time the universe threw me a bone.

    • My port gave up blood without a single hissy fit.
    • My numbers came back high enough to keep going.
    • And get this: two hours. That’s it. TWO HOURS of chemo.

    I don’t know if it was my lucky shirt, or maybe channeling my mom calling out ā€œBig Money!ā€ before she rolled the dice at the kitchen table. But somehow, today the chemo room was a blink instead of a marathon.

    The nurses strapped a new little gadget onto my arm—like some weird futuristic bracelet—that’s set to shoot ā€œlife juiceā€ into my veins tomorrow. Supposedly, it’ll beef up my white counts. Honestly, it feels a little sci-fi, but hey, if it works, I’m in.

    The chemo room itself was pretty calm today—no drama, no chaos. To my left, a husband stayed by his wife’s side the whole time. Sweet as pie, and a good reminder that not all superheroes wear capes—sometimes they sit quietly in vinyl chairs.

    And then there was the new lady in Lookout Chair #11. Let me tell you, she showed up like it was Fashion Week. Gorgeous dress, killer high heels that would’ve sent me face-planting in under thirty seconds. I loved it. She wasn’t here to look sick—she was here to shine. And it worked.

    No chemo next week, which means I get a break from the chair and a chance to rest up for whatever adventures are waiting. (Spoiler: probably not heels that high. Ever.)

  • The Faces We Carry

    Oncology waiting rooms are strange places. You sit there surrounded by people—hopeful faces, broken bodies—and after a while, you stop really seeing them. It’s a survival trick, I think. If you really looked at every single person, every limp, every hollow cheek, every set of nervous fingers tapping, you’d fall apart before they even called your name.

    But today, that survival trick failed me.

    I saw her. Alone. Perched on the edge of a chair like she was ready to bolt, feet tapping with enough energy to power the hospital’s lights. Small, fragile even, but still holding herself upright with a kind of dignity cancer hasn’t managed to steal yet. Thin hair. Paper-thin skin. A cane she leaned on like it was her last good friend.

    And then it hit me—I knew her. Not this version of her, not this worn-down, cane-clutching, chemo-room version. I knew her from before. She was a woman who always swayed to the music and made the entire room come alive, entertaining us all. She lost her partner to cancer decades ago. Life had already sucker-punched her once, and here she was again, still standing—well, sitting—but damn it, still here.

    As these things go, she disappeared into a lab, and I disappeared into the oncologist’s office. But later, chemo brought us side by side, two chairs apart, IV poles standing guard like silent executioners. Our escorts had been banished back to the waiting room (because some women do not share their strongest moments with the people they love the most – we need the space to breathe.)

    The nurse asked her name, and I knew without a doubt the beautiful vital woman she had been. The woman she still was, somewhere inside.

    I tried to talk to her, but chemo cocktails don’t mess around. They dragged her into that deep, heavy sleep we all know too well. So I sat. And I watched. And I remembered.

    And then, without even meaning to, I prayed.

    I prayed she’d have another chance to dance. To laugh. To feel like herself again.

    Mostly, I prayed we’d all get even just one more shot at being the people we were before cancer barged in. Whole. Carefree. Alive in ways that don’t come in IV bags.

    Because cancer wants you to think it’s all loneliness and loss. But sitting there, two chairs apart, I realized remembrance, hope, and healing are stubborn little things. They stick. Even here.

  • What do I really really want

    I just want it to be over — magically over. Not some haunted, never-leaving-for-good over, but over like I don’t have to do this anymore. Plain and simple. No more appointments, no more counting pills like prayer beads, no more scheduling my life around naps and pukes. Is that too fucking much to ask?

    I know the truth: you have to go through the damn thing to get past it. You can’t short-circuit the mess. You have to slog. So here I am — slogging. Hazy brain days that feel like I’m moving through molasses. Brainless moments where I stand in front of the fridge like it’s a conspiracy. Rest when my bones beg for it; heal when my body remembers how; poison because science says so; repeat because the calendar is a cruel comedian.

    Between the bleak and the boring, what I really want is the tiny, ridiculous stuff: to write in peace and light without the guilt that I should be ā€œdoing something productiveā€ while I wait for the next appointment. To sit at the kitchen table with my laptop and not have the cloud of ā€œwhat ifā€ hovering over every line. To drink coffee that’s still hot. To walk outside and not count steps like they’re a report card. To have a normal week that does not begin and end with an IV drip and a list of side effects.

    Also? I want to shoot a fire arrow into this cancer and blow it the fuck up. There. I said it. There’s the part of me that wants to be dramatic and violent and victorious all at once. I want a literal and metaphorical kaboom — lights, confetti, the whole over-the-top ending to this chapter. Tell me that’s unreasonable and I’ll roll my eyes and bring the fireworks anyway.

    And listen: I’m conflicted. I can want peace and quiet and also want to scream and torch the thing that put me here. I can be grateful for the hands that hold me and furious at the time it steals. I can laugh at myself for crying over a lost sock and then sob over the way the chemo makes my bones feel like someone took a jackhammer to them. Cancer doesn’t come with an instruction manual that says ā€œhow to be graceful.ā€ It comes with a lot of improvisation, a poor soundtrack, and the occasional emergency snack saved by a patient husband I nicknamed my own Luke Skywalker.

    So I keep going. I show up for the naps and the meds and the ridiculous moments because there’s still light to find. There are small mercies — a friend who drops off a pie, a dog that insists on dragging me outside, a good TV show that distracts for forty blessed minutes. There are stories I didn’t think I could finish that surprise me by being halfway decent. There are mornings when my head clears and I can see color again, and those mornings are holy.

    Mostly I keep going because I refuse to let this story end with me never coming back over it. I want the ending where I walk out the other side — bruised, scarred, wiser, still snarking — not looping back into the same damn place. That’s the stubborn part of me speaking: I want life after this. I want the pages after the battle. I want to play, to laugh, to be boring and ordinary and loud and alive.

    So yeah — I’ll keep slogging. Hazy brain, brainless days, rest and heal, poison and repeat. I will draw in the light where I can. I will fire the arrow in my imagination and shout when I need to. And I will keep looking for the little lights that make the whole thing bearable until one day—God willing—the arrow does its job and this is over for real.

  • Sassy Walks V3: Mailbox Marathons & Midnight Patrols

    Y’all, my mama could use some good thoughts (and maybe a few extra licks). She’s moving slower than a turtle on a hot day. If I didn’t have her on this leash, I swear she’d just wander right off into the woods. Good thing I’ve got her back—well, her front, too.

    The other day, we only made it to the mailbox. THE MAILBOX. I can cover that in about five leaps, no problem. Mama? Not so much. She’s only got two short legs, and let’s just say her butt doesn’t exactly help with the leaping situation.

    But don’t get me wrong—she’s doing her best. She takes her medicine, putters around the house, and always makes sure I get my potty breaks. Sometimes she just opens the back door and sends me solo into the yard. I don’t love it, but I get it. She’s tired.

    At night, I take my nursing duties seriously. I tuck Mama in real tight, then patrol between her and Daddy. I probably wake him up with my ā€œcheck-ins,ā€ but hey—somebody’s gotta keep an eye on the humans. That’s my job.

    Anyway, that’s all I’ve got for now. Mama’s got chemo again at the end of the week, so I’m saving up my licks and my favorite toys to share with her. Maybe y’all could do the same—send her some good vibes, belly rubs, or squeaky toys from afar.

    šŸ’š
    — Sassy

  • Drops of Fears

    Photo by Ali Hassan on Pexels.com

    Tears falling—
    Drops in the vein.
    Never staying, never staining,
    Never easing the pain.

    Drops sliding
    Through the vein:
    Maybe a cure,
    Maybe more pain.

    Tears, fears, flips—
    Drops, stops. Cancer quits.