Tag: Second Battle

  • 33 Days Post Poisoning

    It has been 33 days since my last official poisoning by chemotherapy.
    Yes, poisoning. Let’s not sugarcoat it — this was not a spa treatment.

    And yet… the effects are still hanging around like an unwanted houseguest who ā€œjust needs one more nightā€ and has now been here a month.

    Exhaustion, I have learned, is not just being tired.

    No no.

    Exhaustion is a personality.

    Some days I wake up feeling like a fully functioning human. I do all the things.
    Laundry? Done.
    Errands? Conquered.
    Cooking? Look at me being domestic.

    This energetic miracle can last for several days and I start thinking wildly optimistic thoughts like:

    ā€œWell hell, maybe I’m fine now.ā€

    That is when the reckoning arrives.

    For the next day or two, I am emotionally and physically paralyzed — like every energetic molecule has been vacuumed straight out of my body. The only known treatment is full vegetation on the couch.

    Not resting.
    Not relaxing.

    Vegetating.

    My brain refuses to form orderly thoughts, so I watch television shows I’ve already seen. Not because they’re good — but because they require absolutely no participation. I cannot handle plot twists. I cannot meet new characters. I cannot commit.

    I need television that says,
    ā€œDon’t worry. You already know how this ends.ā€

    Looking back, this happened the last time too. I just assumed it was because I had an open wound trying to kill me from the inside. Reasonable conclusion.

    This time, though, there’s no open wound.
    There is, however, the minor detail that I am 21 years older.

    So naturally I thought,
    ā€œOh. This must just be because I’m 69.ā€

    But no.

    Turns out it’s not age.
    It’s chemo — still swinging long after the bell rang.

    If history repeats itself (and cancer does love consistency), this phase will pass too.

    Which brings me to my current burning question:

    What the hell comes after this?

    Do I get energy?
    Brain cells?
    Motivation?
    A complimentary tote bag?

    No idea.

    But for now, I will remain on the couch, staring blankly at familiar TV characters who ask absolutely nothing of me — and waiting for my body to remember how to be human again.

    One day at a time.
    Preferably with snacks.

  • The Scanxiety Olympics

    The most dreaded and most welcomed test for someone who has completed their course of chemo happens tomorrow.

    The PET scan.

    Also known as:
    ā€œPlease tell me the chemo actually did what it was supposed to do.ā€

    This magical little test should determine whether chemotherapy killed off the cancer.

    If YES — I celebrate. Possibly loudly. Probably with inappropriate language.
    If NO — I dissolve into a small emotional puddle on the floor and may need to be mopped up with paper towels and grace.

    The fun part?
    I don’t even get the results right away.

    No, no. That would be far too humane – or not.

    I get the scan…
    and then I wait five long days to get the results – from the Dr. of course. No PET Scan tech deserved the melt down (if it comes).

    Which means I will spend the days in between riding the emotional roller coaster from hell.

    Let me introduce you to the schedule:

    • Morning: I feel hopeful. Strong. Optimistic. A survivor.
    • Late morning: Mild dread creeps in.
    • Afternoon: I am convinced the cancer is hiding like a tiny evil ninja.
    • Evening: I am absolutely certain there is cancer in every single cell of my body and I will not survive the week.
    • 2:17 a.m.: I have never had cancer at all and these bitches are just trying to mess with me.

    Up.
    Down.
    Middle.
    Then WAY WAY OUT into left field where logic goes to die.

    That’s the thing about cancer.

    You can get rid of the cancer —
    but the mental trauma sticks around for years. Sometimes decades.

    Your body may heal, but your brain keeps receipts.

    Every scan becomes a psychological event.
    Every appointment feels like a pop quiz you didn’t study for.
    Every ā€œwe’ll know more after the testā€ sounds suspiciously like a threat.

    So if I seem a little off this week —
    a little quiet, a little emotional, a little extra —
    please know I’m just riding the scanxiety roller coaster.

    I’m doing my best to stay positive.
    I’m doing my best not to spiral.
    And I’m doing my best to remember that right now, in this moment, I am here.

    So y’all be patient with me this week.

    I’ll be the one strapped into the front seat of the emotional carnival ride,
    white-knuckling the bar,
    trying not to scream…

    …but probably screaming anyway.

    šŸŽ¢šŸ’Ŗ

  • Getting Away (Wheelchairs, Wind, and Unexpected Victories)

    Getting away from home is always fun.
    Getting away from home with great friends is even better.

    So we met some friends in Key West — because apparently my post-chemo self still believes in optimism and ocean breezes.

    When I left home, my stamina was kaput — as my mother would have said. Completely gone. Missing in action. Possibly hiding under the bed.

    I even agreed to a wheelchair ride through the Atlanta airport.

    Now let’s be clear: the wheelchair was hard, uncomfortable, and absolutely not what you’d call luxurious.
    BUT — being whisked through crowds like airport royalty and taking the elevator instead of the escalator?

    Well. For once, the last six months offered a perk.

    The Key West airport is MUCH smaller, so I walked out on my own two feet.

    I didn’t realize it at the time, but that little walk turned out to be a metaphor.

    The first day the weather was beautiful. Luke and I enjoyed the resort, met up with friends, ate, drank, laughed, and had one of those rare days where cancer didn’t get an invitation.

    The next morning was even better.
    We rented a golf cart and spent three glorious hours touring the island — which is now officially my favorite form of transportation. Minimal exertion. Maximum joy.

    We returned around three and did what mature adults with medical trauma do.

    We took a nap.

    Around five, we heard what sounded like a pack of wild children racing through the hallway. As we opened the door to head to an outdoor reception and dinner on the beach, the wind hit me so hard I thought:

    ā€œWell. This might be it. Blown clean into the Atlantic.ā€

    And that wind?
    It stayed.
    All week. And brought temperatures in the fifties! In Key West!
    Relentless. Rude. Completely unimpressed by my beachy dreams.

    That did not stop us from walking and playing and enjoying ourselves!

    Naturally, the day we were leaving was perfect.

    Of course it was.

    But here’s the thing — despite the wind and the cold, we had a fabulous time.

    Luke and I spent real time together.
    We laughed with friends.
    We lived instead of just enduring.

    And when we returned home, I walked through the Atlanta airport on my own two feet.

    No wheelchair.
    No escort.
    Just me — stronger than when I left.

    Sometimes the miracle isn’t sunshine or calm seas.
    Sometimes it’s realizing you’re walking forward again — even when the wind is trying to knock you over.

    And that made it a wonderful time. ā¤ļø

  • The View From Right Now

    It’s been almost three weeks since my last chemotherapy treatment, and I am feeling… so many feels.
    Like, Costco-sized feelings. In bulk.

    On the bright side, I haven’t had a night sweat in five whole days. FIVE.
    That alone deserves a parade. Or at least fresh sheets that don’t feel like they were wrung out by a lifeguard.
    I feel better. My mind is a little clearer. I’ve even started tiptoeing into that dangerous mental neighborhood called ā€œLife After Cancer.ā€
    You know—the place where people make plans. And assumptions. And maybe even buy concert tickets more than a month out.

    But then there’s the other hand.
    I’m still tired. A lot.
    Like, do one thing and need a lie-down tired.
    My motivation seems to have a strict one-activity-per-day policy, and my brain shuts down the moment exhaustion shows up—which is often and without notice. Concentration just packs up its little suitcase and says, ā€œNope. I’m out.ā€

    And then there’s the third hand.
    Which I don’t technically have, but my anxiety has graciously supplied.

    This hand is busy worrying.
    Worrying that I’m not cancer-free yet.
    Worrying while I wait for a test that hasn’t even been scheduled because insurance is apparently on a scenic route.
    Worrying that even if I am cancer-free now, what about next year?
    This was my second round—does that mean I get a punch card? A loyalty program? Do I do this forever?
    Will it be a long life?
    A shortened one?
    Is all this mental ping-pong the reason I sometimes feel completely frozen, like my body just hits the pause button?

    Probably.

    The truth is, the view from right now keeps changing.
    Sometimes it’s hopeful.
    Sometimes it’s foggy.
    Sometimes it’s downright scary as hell.

    But here’s the thing I’m trying to hold onto: right now is not the whole story.
    Right now includes dry sheets, a clearer mind, and small signs that my body is still trying—still healing.
    Right now doesn’t require me to solve next year, or the rest of my life, or every possible outcome.

    Right now just asks me to sit here.
    Breathe.
    Do one thing.
    And trust that the view will change again.

    And maybe—just maybe—the next version will be even better.

  • Night Sweats

    I am sick and tired of night sweats. Sick. Sick. Sick. There, I’ve said it out loud.

    And no, I am not talking about menopausal night sweats.
    I conquered those decades ago like the warrior woman I am.

    I am talking about the clothes-drenching, sheet-drowning, middle-of-the-night baptismal pool night sweats caused by lymphoma and chemotherapy.
    The double whammy.
    The overachiever of bodily betrayal.

    Three, four, sometimes five times a night.
    Every night.
    For weeks.
    Every. Single. Night.

    Bedtime is no longer bedtime. It is logistics.

    Before bed, I line up five sets of pajamas like I’m staging a quick-change Broadway show. Each stack is carefully oriented so when I grab it half-asleep, the front is actually the front. This is not my first rodeo.

    Next: towels. Five or six of them.
    Last time I used sheets and realized this time… I don’t care that much anymore.

    You fall asleep hopeful (rookie mistake), having turned the air down because surely this will be the night it doesn’t happen.
    Spoiler alert: it happens.

    You wake up drenched. Absolutely soaked.
    And somehow also freezing, because the air is blasting and your body has turned itself into a swamp.

    So you sneak out of bed, shaking and shivering, and stumble over to the stash.
    You peel off the wet clothes.
    Put on the dry ones.
    Repeat this process while trying very hard not to wake up too much or fully question your life choices.

    First towel: hair.
    Fortunately—thanks to chemo—I don’t have much hair, so that’s efficient at least. That towel goes back with the stack.

    Second towel: to the bed.
    It gets laid over the bottom sheet.
    You flip the pillow.
    Then you wad up the wet top sheet and shove it to the foot of the bed under the covers.

    I’m short. I don’t need that part anyway.

    Two hours later… you do it all again.
    And then again.
    And then again.

    Eventually it’s after 4 a.m., and anything after that is officially get-up time, whether you like it or not.

    The interesting thing—at least for me—is that this doesn’t start at the beginning, when the cancer is at its strongest.
    It starts later.
    With the cumulative effect of the chemo.
    Like a delayed punchline no one asked for.

    I am very grateful the chemo is over.

    And I will be extra glad—borderline celebratory—when the night sweats finally decide to pack up their towels and leave.

    Until then, I’ll be over here, running a one-woman overnight laundry service, wondering how it’s possible to be both soaked and freezing at the same time.

    Again.